You've received traumatic news;
you have a chronic or life-threatening illness. Aside from fear
you begin a journey that can leave many feeling alone and
isolated. Believing that you are the only person going through
this challenge is heart wrenching and not true. You may not have
anyone in your circle going through this experience, there are
many, possibly pass on the street who are facing a health
crisis. How do you begin to construct a healthcare team that
will support you to your destination, health?
If you've ever wanted to be a
teacher or in the corporate world we think of training and
development, this is your chance. Getting people on board with
your journey to wellness means they first have to understand the
challenge. They have to understand not only the diagnosis, but
the specifics of you particular diagnosis. When others are
rooted with information they can more readily support you and
your decisions. Those you want to be part of your inner circle
during the treatment phase can either meet with you individually
or you can hold a scaled down town hall meeting for those in
your support network. There will be other opportunities for
those who don't need the specifics to be sideline cheerleaders
during your journey.
Clarity is important when
making decisions. By the time you begin meeting with people or
enlisting your care network most likely you've already made
treatment decisions. The opportunity to share you health plan is
the lead your care team needs to support you through this
process. When you are clear on not only the treatment, but why
you and your doctor chose this treatment you set aside fear and
anxiety in those around you allowing them to focus on supporting
you in your decisions.
It's important to remember that
your health is a not a democratic republic. You are in control
of your health along with your formal healthcare team. Your goal
is not to receive healthcare by consensus, it's confusing,
overwhelming and frankly is not in your best interest. You may
want to give those in your care circle a voice, but don't give
them a vote when it comes to decision making. You can always go
the old fashioned route and create a suggestion box if you
really want their input, but remember they are suggestions not
dictates.
Going through treatment is
taxing. As the CEO of your health you should feel comfortable
sharing your wishes with your care team. If pain is the key
concern, then that should be their concern. If quality of life
is paramount, then all decisions and actions should support that
goal. The treatments and the outcomes are all based on what you
believe will be in you and your families best interest. Honest
is the key to bringing this to fruition. You will need to do
some soul searching and know how you want to live your life.
It's fine to change your mind as you move through the process,
but let your voice been heard by the medical community and the
care team.
Keeping in mind that it's your
body, your health and your life should be the focus of all
decisions. Inviting your family, friends and colleagues to
support you in this process can be helpful and an enriching
experience for all. You're the lead on the rowing team. You call
out when it's time to row, and make sure that everyone is going
in the same direction at the same time. Feeling comfortable with
the decisions you make will influence how supportive your care
team is on a regular basis. They are there to support your
decisions, so feeling grounded in your own wellness process is
critical to getting everyone on board following your diagnosis.